Hell week for Bennett

For Bennett, this week started bad, got worse and ended up just okay.  First, his brother went home and he was left all alone in the hospital with parents who were now juggling babies in 2 locations. Then, they determined that his eyes were worse, so he needed surgery on Thursday.  He will lose his peripheral vision to hopefully save the rest of his vision.  He came back from surgery intubated (on the ventilator).  They'll know next week if the surgery worked.  He went off the ventilator, then was having complications so they put him back on (intubated again).  He was a mess and so were we.  When he came off of the ventilator again, he had an inflamed airway from the intubated.  He wasn't able to eat orally an more and had not been able to get any food the day of surgery.  Then they started him back on partial feedings.  He was so uncomfortable and when he cried is sounded like a 50-yr smoker gasping for their last breath.  It was horrible.  Then, there was an outbreak of some bacterial infection in the hospital.  He doesn't have any symptoms but tested positive as a carrier, so we have to gown up and wear gloves in the hospital for the rest of his stay.  No, we cannot touch him for the rest of his stay!!  Today is Sunday and he is feeling better and is eating by bottle again.  He's doing okay but has a way to go to be back to where he was last week.  I didn't realize what a setback this surgery would be.

We were sad for Bennett that Andrew was home.

They still had some time together

I'm including all of our good time from this week here on Bennett's post.

Richard courted Char on their way to school.  Erin overheard their conversation: "Charlotte, do you LOVE songs?  I love songs!"

pick-up from school - friends are helping us out a lot

more visitation rights before the outbreak

after surgery

While Bennett was in for surgery, I was in Pullman, WA at the grand opening of the renovated 1920s WSU Community/Duncan Dunn Student Housing project.  All I could think about was Bennett.  The marching band came out and played the WSU fight song.  I say it was for Bennett.  Our good friend Carolyn saw the video and adapted the words of the song for our boys...Fight, Fight, Fight for The Wilson Twins! Win the Victory! We're going to win the day for B & A! Best in the West, we know you'll all do your best so On, on, on, on! Fight to the end! Honor and Glory we must win! So fight, fight, fight for the Wilson Twins and victory! Go Twins!

still on the vent

lost weight

this pretty much sums it up

On Sunday, Char, grandpa Garnon and Brad went on a Portland Sunday Parkways bike ride with friends.  We had a great time.

a balancing act

I love Mason's new glasses!

He's feeling a little better today, eating more and airflow is down to 2 liters.